David Rearick, DO, MBA, CPE, received his DO from Midwestern University, Chicago College of Osteopathic Medicine, and his MBA from Emory University. He is known nationally as an expert in the fields of wellness, benefit design and oversight of care management programs. In addition to his frequent speaking engagements and professional articles, Dr. Rearick has authored Good Health is Good Business-an Implementation Guide for Corporate Wellness (www.wellfitadvantage.com). He is a board certified family physician with 20 years of clinical experience. After leaving 20+years of clinical practice, Dr. Rearick served as medical director for Aetna, as Chief Medical Officer of a national health cost containment company, and currently is the VP of Medical Management for Strategic Benefit Solutions, an Atlanta based health and welfare consulting firm helping organization manage their healthcare costs and productivity by implementing health status improvement strategies. He also serves as medical director to the Benefit Advisors Network, a consortium of 30 health and benefit consultancies and Transparent Systems, a pharmacy benefit management procurement consultancy.
Paul Wicks (BSc Dunelm, PhD London, CSci) is part of the research team at PatientsLikeMe. He was born in Reading, England and spent several years living in Switzerland and the United States during childhood. He developed an interest in human biology at A-Level and chose to read Psychology at Durham University. Following his undergraduate degree he was awarded a prize PhD studentship at the Institute of Psychiatry, King’s College London. His supervisors were Dr. Laura Goldstein and Dr. Sharon Abrahams, both of whom have undergone clinical and academic training and are two of the leading authorities on the psychological consequences of ALS/MND. The PhD was under the overall supervision of Professor Nigel Leigh, an internationally renowned leader in the field of neurological conditions including rare disorders such as PLS, PMA, PSP and MSA.
For his PhD, Paul travelled the UK testing patients with rare forms of ALS/MND, specifically the genetically inherited familial form of the disease, and progressive muscular atrophy (PMA), which affects only the lower motor neurones. As an adjunct to his main project Paul also carried out the UK’s largest survey of depression and anxiety in MND from a 12-month consecutive sample from King’s College Hospital and collaborated with Dr Martin Turner on a neuroimaging project using PET. He completed his PhD thesis in three years and passed his viva with no corrections; a rare achievement.
During the three years of his PhD he became heavily involved in supporting the Motor Neurone Disease Association; helping to raise £30,000 of donations, writing information sheets, training healthcare professionals, and giving talks to local branches. He has spoken at a number of national and international conferences, and has twice won the British Neuropsychiatry Association prize for best speaker. More recently, Paul was employed by the Parkinson’s Disease Society under Professor Richard Brown on a three year project to investigate depression in Parkinson’s disease.
Paul joined the PatientsLikeMe team as a consultant in 2006 as a moderator in the forum, drawing on his experience at the BUILD forum. Working remotely from London the role quickly expanded to include curation of the treatment and symptom databases, carrying out scientific research, and designing new communities. As the company has grown, the R&D team has grown with it, to include 5 PhDs and 2 RNs working full-time on improving patient outcomes, the only team of its kind in the world.
The son of an IT marketing consultant, Paul has always been at one with technology and interested in communicating ideas. He was the webmaster at the BUILD (Building User Involvement in MND) project, the UK’s largest forum for people with ALS/MND, for five years. He also created the research volunteer database “MindSearch” at the Institute of Psychiatry. Paul has consulted for UK GRAD, an organisation involved in teaching transferable skills to PhD students, and was founder and editor-in-chief of a web based magazine for PhD students in the UK.
Paul is happily married with two cats.
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RareShare was co-founded by David Isserman and Eric Steel in early 2008 on the idea that there is a better way to bring together patients, families and healthcare professionals to share knowledge and personal experiences about rare medical disorders.
While rare disorders may seem to impact only a small portion of the population, together they affect over 30 million individuals in the United States and Europe alone.
Due to the comparably low level of occurrences of individual rare disorders, there is often a lack of information and support for patients and their families. Our communities are designed for people to share experiences, explore treatment options and find support among others affected by the same disorders.
David Isserman is an experienced entrepreneur with a passion for building companies. Over the years, David has amassed a broad range of knowledge working in the technology, consumer products, retail, biotech, and public relations industries. Prior to founding RareShare, David founded Isserman Consulting, a successful communications and strategy consultancy that advised early-stage companies. Before that, he was a co-founder of The Selling Block, a company specializing in asset liquidation for businesses, which he sold in 2006. David holds a Bachelor’s in Business from the Indiana University Kelley School of Business and is currently an MBA candidate at Columbia Business School in New York.
Eric Steele’s background centers around the financing and operations of high growth technology firms. Prior to RareShare, Eric founded ForePoint Networks, a wireless internet service provider delivering high-speed connectivity throughout rural Indiana. Eric has extensive experience working with angel and venture investors and has assisted in closing multiple rounds of financing in both management and consulting roles. Eric is actively involved in the community and sits on numerous boards ranging from entrepreneurship to community outreach.
- 30 Million People – http://rarediseases.info.nih.gov/AboutUs.aspx
- SCLS – http://www.rareshare.org/communities/systemic-capillary-leak-syndrome
- AMN – http://www.rareshare.org/communities/adrenomyeloneuropathy
- Nutra Pharma – http://www.NutraPharma.com
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About Dr. Amir Hannan
Dr Amir Hannan is a full time General Practitioner at Haughton Thornley Medical Centres in Hyde and a founding member of the Records Access Collaborative having enabled all his patients to be able to have full access to GP held records via the internet if they wish for over three years. Over 600 patients of his are now accessing their GP records this way. He has helped to develop a practice website, www.htmc.co.uk, which supports patients, clinicians and managers in a world where information and services can be made available for patients and their families.
He is the Information Management &Technology lead for NHS Tameside and Glossop (formerly known as Tameside & Glossop PCT), having recently stepped down as Clinical Governance lead and as a Professional Executive Committee (PEC) member. He is also a member of the local Care Record Development Board supporting patients, clinicians and managers to understand how personal health information can be shared across a health and social care setting and to promote best practice by combining local expertise with national and international experience and knowledge. He has recently become the Primary Care IT lead for NHS North-West (formerly known as North-West Strategic Health Authority) and is a member of the Map of Medicine strategy group, NHS North-West.
He is also the Greater Manchester NHS Clinical Assessment and Treatment Service clinical lead on behalf of Greater Manchester PCTs. Dr Hannan has written and lectured extensively on health informatics matters and his experience to date. He is also a member of the HealthSpace Reference Panel (www.healthspace.nhs.uk) as well as the National Clinical Reference Panel for the Summary Care Record within NHS Connecting for Health (www.connectingforhealth.nhs.uk). He is a member of the Clinical Leaders Network (www.cln.nhs.uk); a member of the Primary Healthcare Specialist Group (www.phcsg.org), a branch of the British Computer Society; and a member of the editorial board of the “Journal of Communication in Healthcare”. He feels most patients should become eMPOWERed in order to support Real-Time Digital Medicine!
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About the interview
David Doherty is the Head of Business Development at 3G Doctor, an innovative mHealth startup based in Ireland. Following studies in Medicine at University College Hospital in London, David began to research and design a remote care solution that would provide patients with a means of private and economical access to the attentions of a registered Doctor. The rapid adoption of 3G Video Phones in the UK and Ireland has created this new point of care for more than 8 million patients.
3G Doctor provides a service to the public offering informed consultations with registered Doctors using 3G Video Mobiles. 3G Doctor also provides free tools that help patients securely create, manage and share their important health information using their mobile phone.
David gave a presentation at the eHealth 2008 Conference at City University London titled “Connected Care: Adding Value to the Electronic Record”:
He got in touch with Mohammad after hearing about HealthCamp UK and looks forward to getting involved in the next event.
Dr Brian Fisher is a GP at Wells Park Surgery, and project executive & clinical lead at PAERS Limited (Patient Access to their Electronic Records System – www.paers.co.uk). He realised that it was important to give patients access to their record and that this would involve solving a number of issues. Brian managed to secure some initial funding to get a project to look at this started. Dr Simon Henley-Castleden was appointed as project manager and funding streams and collaborators were investigated.
PAERS Limited is a small independent company set up by doctors to provide tools for General Practitioners to enhance services for their patients through the use of touch screen kiosk technology. It was established as a company in the summer of 2003, building on the success of Brian’s pilot project providing patients access to their own electronic medical record.
Currently there are two PAERS Kiosks available:
- PAERS Records: ‘A self-contained system which allows patients to access and navigate around their GP electronic medical record autonomously, and which provides them with the information that they need to understand the medical terminology.’
- PAERS Arrivals: ‘A self-contained system which allows patients to independently”Arrive” themselves for an appointment at the practice. The patient is informed of who they are seeing and the approximate wait until their appointment. The practice administrative system is updated to reflect the arrival of the patient.’
Brian presented a ligthning talk at the HealthCamp UK 2008, where he met Mohammad.